I've Been a Little Quiet Lately

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I've Been a Little Quiet Lately


I realized that I have been kind of MIA lately so I thought I would post a quick update for those who are interested. I've been in funk lately and feeling a little down and sorry for myself. I am not sure why, it just sort of happened. Dennis let me throw my pity party and I am glad to say that it is now out of my system.

Most of you know that February was a tough month for me. Too many ER visits, a hospital stay, and the unexpected loss of my biological mother. Infection and a blood clot decided to show up and ruin my trip to California two hours before I was scheduled to leave. I was not a happy camper. I did have the bright spot of learning that the second chemo drug I started is working for me, and my tumor marker number dropped over 50 points. Other than that, there hasn't been a whole going on. I think I am starting to go a little stir crazy.

I decided to go ahead and reach out to the Mayo Clinic and see if they would accept me as a patient. A second opinion never hurts, right? My awesome team at Essentia encouraged me to do so and said they work very closely with Mayo. I was relieved. I definitely didn't want this to be seen as some sort of dissatisfaction with the care I am getting now. Mayo left a message for me last Friday so I am going to call them first thing tomorrow morning to see what they have to say. I am not really looking forward to redoing all the tests and labs but it will be worth it if they allow me to be a patient there.

Tomorrow and Tuesday will be long days at the hospital. Lab work first thing tomorrow morning at 8:30 and I meet with my oncologist at 10:30. After that... chemo. I have been really bummed out that this time around the chemo drug is causing me to lose all my fingernails and toenails. I have been trying to cover them up with silly bandaids so I don't have to look at them. I don't think there is really much I can do about it but I am still planning on asking my doctor tomorrow. I am guessing I just have to wait it out. Of course tonight I will have the usual stress and worry of hoping my tumor marker continues to move in the downward direction. Either way I am due for a PET scan soon to see what is really going. If Mayo accepts me as a patient I will most likely have the scan in Rochester. I'll be happy if my number stays the same, but I know I will flip out if it goes up.

So if you have a moment, please send some good, positive thoughts my way. We would appreciate it. If nothing else it really makes me feel better to know I have people pulling for me. I will post another update tomorrow and let you all know how it went. Hopefully you will see me posting a lot of "Woo Hoos" and ass kicking memes or cartoons.


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