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Study explores why people at risk for Huntington's disease choose not to undergo genetic testing

 2 months ago       74 Views

As many as 90 percent of individuals who have a parent with Huntington's disease (HD) choose not to take a gene test that reveals if they will also develop the fatal disorder -- and a new study details the reasons why.

Understanding the "why" matters as new clinical trials testing therapies for people who haven't yet developed symptoms of Huntington disease requires participants to be tested for the HD gene to be included in the trials.

The study, published today in Clinical Genetics, also suggests that individuals who have chosen not to be tested can benefit from supportive counseling, which is not usually offered.

Health care providers really need to help individuals at risk for Huntington's disease think through their decision whether or not to participate in a clinical trial that requires testing. For someone who has not wanted genetic testing for many years, we may be leading people to do a test that has not been and still may not be in their personal interest."


Author: @DailyCupofYoga

Source: news-medical.net

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