The Parkinson Council


About us

The Parkinson Council, an affiliated chapter of the National Parkinson Foundation (NPF), raises funds to provide resources and services to people with Parkinson’s disease living within the Delaware Valley region.

 

Our Mission

The mission of The Parkinson Council is to raise funds to provide financial support and grants to locally based nonprofits dedicated to improving the quality of life for Parkinson’s disease patients, caregivers and families.

 

Our Values and Vision

The Parkinson Council is the premier local organization dedicated to improving the quality of life for patients, caregivers, and their families impacted by Parkinson’s disease.
 
We invest in research, education and services provided by world renowned institutions, and innovative service organizations in the greater Philadelphia area.
 
We strengthen our role in the Parkinson’s community by increasing the number of lives we touch every year.
 

Contact

For more information, please contact Wendy Lewis, Executive Director of the Parkinson's Council:
 
The Parkinson Council, Inc.
111 Presidential Blvd. Suite 141
Bala Cynwyd, PA 19004-1023
t: (610) 668.4292
f: (610) 668.4275
e: info@theparkinsoncouncil.org
 

 


About Parkinson's

 
Parkinson's disease was first described in England in 1817 by Dr. James Parkinson. The disease most often develops after age 50. It is the second most common nervous system disorder of  the elderly. Sometimes Parkinson's disease occurs in younger adults, but is rarely seen in children. It affects both men and women.
 
Parkinson’s disease affects 1.6 million people in the U.S. and, according to theNational Institutes of Health, about 50,000 new cases are reported annually. This number will rise dramatically with the aging of the “Baby Boomer” generation.
 
Symptoms of Parkinson’s disease range from tremors, slowness of movement, rigidity, difficulty walking and poor balance to difficulty in speech and swallowing, depression and memory loss.  It is a chronic neurodegenerative illness with variable progression over time.  Each person diagnosed with Parkinson's will experience symptoms differently. 
 
We do not know what causes Parkinson’s disease and, as yet, there is no known cure.
 
 

 


Patients and Caregivers

 
Caregiving may be one of the most important roles you will undertake in your lifetime.
 
Caregiving is not easy, nor is it something most of us are prepared to do. Like most people, you are generally unprepared for the many demands the disease puts on both you and your partner.
 
You have a million questions about your family member or friend’s illness. Like many you have a job and are juggling several responsibilities. Your family member or friend may require a lot of assistance or you will need help providing care for them.
 
Most caregivers feel alone, helpless, confused, unprepared and unable to provide for the needs of the Parkinson's Disease patient.
 
The best way to support yourself and your loved on is to learn about being a caregiver. This will help you feel supported and more comfortable in your role.
 

 


Support Groups

 
A support group is a way for people to help Parkinson's Disease patients cope with problems they all share.
 
These groups offer social and emotional support to patients and their care partners, education and information from peers and professionals and a chance to be active for oneself and for others in the community.
 
Members give and receive information and encouragement through the mail, phone calls, and group meetings.
 
There are more than 40 support groups now active in Pennsylvania, New Jersey, Delaware and Maryland. Groups meet weekly or monthly.
 
To find a support group near you, please visit http://www.theparkinsoncouncil.org/supportgroups.