Congenital Heart Walk


Welcome to the Congenital Heart Walk!

The Congenital Heart Walk (CHW) is the only national event series dedicated to fighting congenital heart disease. In 2015, more than 50,000 walkers will gather in more than 25 cities across the U.S. with the goal of raising much needed funds to benefit cutting-edge research, patient programs, and advocacy initiatives.
 
Unite to fight congenital heart disease! Register for a walk in your community today!
 

One event benefiting two great organizations

 
The Congenital Heart Walk is an ongoing national effort between the Adult Congenital Heart Association (ACHA) and The Children’s Heart Foundation (CHF). We walk to honor and remember the millions who have been impacted by congenital heart disease (CHD).
 
The Congenital Heart Walk shows the nation how a team of inspired individuals can join together to make a difference. Funds raised will support the missions of both national nonprofit organizations who are uniting to fight CHD! Since 2010, CHW has raised more than $5 million in total.
 
Motivated by the needs of our children, the goal of The Children’s Heart Foundation is to bring health, hope and happiness to children impacted by congenital heart defects, the number one birth defect in the United States. We accomplish this goal by funding the most promising research to advance the diagnosis, treatment and prevention of congenital heart defects.
For more information about CHF, please visit www.childrensheartfoundation.org.
 
The mission of the Adult Congenital Heart Association (ACHA) is to improve and extend the lives of the millions born with heart defects through education, advocacy, and the promotion of research.
For more information about ACHA, please visit www.achaheart.org.
 
 
 
 
 

Why We Walk: Stories of Congenital Heart Disease:

Isabella C.

Local walk: Gainesville, FL
 
CHD connection: My little brother, Gregory, was born with a congenital heart defect 8 years ago. As a result of mitral valve stenosis and a subaortic membrane growth, Gregory has endured 7 open-heart surgeries. Despite the obstacles he has faced, he wears the biggest smile I know. Watching such a little boy be so strong has been incredibly inspiring.
 
Why you walk: As a University of Florida undergraduate student, I began the Gainesville CHW to raise awareness within the Gator Nation and surrounding Gainesville community. On behalf of my committee and co-founder of Gators for The Children’s Heart Foundation, Rachel Sharp, we walk to honor and remember those born with congenital heart defects.
 

Lily D.

Local walk: Atlanta, GA
 
CHD connection: My Daughter Lillian Victoria “Lily” D was born with Hypoplastic Left Heart Syndrome on April 2, 2014. Her condition went undiagnosed until April 7, 2014 when we rushed her to the hospital where she passed away a few short hours later.
 
Why you walk: Shortly after Lily passed away I found out about the first annual Greater Atlanta Walk and #TEAMLILY was formed! I decided that I would not let my angel’s death consume me. I would work to raise funds and awareness so hopefully one day babies like Lily would have a chance for survival. In our first year #TEAMLILY was the Top Team at the Greater Atlanta walk and was represented at the Tampa, Long Island, and Michigan walks too! In year one, #TEAMLILY raised over $10,000! So far for 2015 we have raised over $5,000. I know that no amount of fundraising will bring her back but I take comfort in the fact that she is living on through #TEAMLILY. - Kim D.

Kim E.
Local walk: Boston, MA
 
CHD connection: I am a 48 year old CHD warrior with transposition of the great vessels, pulmonary stenosis and ventricular septal defect. I have had five heart surgeries, including a Rastelli at age nine. Four years ago I received a transcatheter Melody valve and two stents.
 
Why you walk: After attending an ACHA conference I wanted to do more to help raise funding and awareness. In 2012 I chaired the first Boston Walk and am going on year 4! I do this because all CHD patients, regardless of where they live, should have access to appropriate, quality care. I also want to help fund research for the growing needs of our community and for advances such as the Melody valve! And, you could not ask for a better community to spend a day with, walking for a great cause!