Usher Syndrome

Usher syndrome is a rare, inherited disorder characterized by partial or total hearing loss and gradual vision loss that worsens over time. An eye disorder called retinitis pigmentosa (RP) is a major symptom of Usher syndrome.

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FDA: Voice of the Patient

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ReelAbilities: NY Disabilities Film Festival

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Hearing Health Foundation

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Clinical Trials

Find out about clinical study opportunities for Usher Syndrome

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