Me and my JME update

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Me and my JME update


Summary of my condition: Juvenile Myoclonic Epilepsy, suffer (Hate this word but don't know what else to use!) from myoclonic jerks and tonic clonic seizures. I was diagnosed in 2012 when I was 15 following a tonic clonic seizure which lasted 15 minutes and a year of jerks.
About 2 and a half years on from my first post on here, I have been doing great! Since then, I have had probably hundreds of myoclonic jerks (which are tiny and I actually haven't had many for a few months now!) but only 2 more tonic clonic seizures both in 2013. One was during our final school band rehearsal before we went to Budapest (Thankfully I still go to go!) and the other was during my GCSE music exam, so not the best of times!
The first 6 months or so after my diagnosis were really tough and I was hardly in school because of my tiredness and weakness. My Dr also thinks I might have been depressed but there were other things going on at that time anyway so that might not have all been doing to my epilepsy.
Despite all that, I got through it and am now living my life completely normally. I'm 18 and hoping to go to uni in September to study film and tv production! I'm so lucky to have the support I have from my family, friends, Drs and school. I actually got given an award by my school for achieving good results in my GCSEs despite everything I went through that year. It was so amazing and encouraging to have my hard work recognised!
So to anyone who might be newly diagnosed or is struggling with anything, remember things will get better. Believe me I've been through a lot and I may not have all the answers, but I do know that if you believe that it will get better, in the end, it truly will.


Comments

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I actually have the same kind of condition and it was super rough at first. But everything you said is so true it does get better when you believe in yourself and work hard! I hope you're doing well and your seizures have gotten better!

Sep 22, 2016 - 4:27 PM by Valerie R

It's massively good to hear from you and happy that you're doing great! The recognition you got for your good GCSE results, it is truly well deserved. Do keep us updated as often as you can. Best wishes always.

Mar 12, 2015 - 9:56 AM by Musole K

Hi Hannah, it is so good to hear from you and more importantly to hear you are doing well. Congratulations on your the award you received from your school and I am sure you are an inspiration to other students and your friends. Please keep us updated from time to time and let us know how you are doing and all the great things you are up to. Keep a smile on your face and I look forward to your next post!

Mar 12, 2015 - 9:02 AM by David D

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