Frustrated

1496 Story Views

 

Frustrated


I spend most of my time behind a desk at work, but am also required to do some field work. My problem is that riding in a vehicle for long periods of time or having to stand and wait some where, just wears me out & causes more pain. I am on several medications that do help with pain. I am on elmiron for my bladder pains and I don't need to use the restroom all the time. I am also on gabepentin and that does helps with the over active nerves, most of the time. I get little jabs of pain throughout my body, which seems to help keep me from falling asleep, I guess. The worst pain I have is the over active nerves in my feet and my Raynaud's during the winter months. Sometimes I can get into a warm bath and the pins/needles sensation will settle down. There are times that nothing seems to work except for time. Not standing on my feet at all seems to help, but if I'm in a vehicle and/or standing, it just aggrivates the nerves even more. My problem is that the people I work with, don't understand. I don't complain, so they don't know I am having issues most of the time. Because of my condition, I'm not allowed to drive the company vehicles, so I have to get one of my co-workers to be the driver when I need to do field work. I know that one of these days, I'm not going to be able to physically do field work & that will be when I will be at risk for losing my job. I am still able to get around on my own, but do have 2 canes & 2 walkers for when/if that changes. I did give up my favorite vehicle because of the vibrations aggrivating my nerves. I can actually drive/ride in my small car longer than I can in a larger vehicle. I do have some good days, but usually they are limited to the mornings. THE SPOON THEORY!


Comments

Sign in or to post a comment on this story!

Christine - If you have not already done so, please come by and join the fibromyalgia support group on this site. It is a private group but we would love to have you there. Thanks!

Apr 07, 2016 - 3:42 PM by Lana B

Fibromyalgia really sucks the life out of a person. Some days, there is just no relief. I am sorry. Gentle hugs to you.

Apr 07, 2016 - 3:39 PM by Lana B

Hello Catherine. I wanted to let you know of a new medication, that I have recently started taking for my fibromyalgia and it has helped my tremendously. It is called Gralise. It is a 24 hour extended release type is gabapentine. I take it at night and I have noticed, mostly in the mornings, that I am not behind the pain. I can get up and walk with much less pain. I just wanted to let you know about this medication. For me, it has been amazing! It doesn't cure the pain, but it makes it much more tolerable. Hopefully, if you are able to give it a try, it will help you, as much as it has for me!!!!! Good luck and God bless! Vikki

Jan 17, 2016 - 6:35 PM by Vikki T

Thank you Catherine for sharing this personal story of what you're going through. Also thank you Mary and Karen for your kind words. I can't imagine how difficult is but I am glad for this community on the site. Please keep us posted and do continue to share your comments too.

Nov 10, 2015 - 4:07 PM by Musole K

Hi Catherine! I also suffer from FMS and find it debilitating. So much so that I can't even work anymore. I won my disability in 2009 finally. I also find it hard to walk without some support. Brain fog is the worst though. I used to be into programming and data and software delivery but the brain has come to the end of creativity and remembering. I had let my "bosses" know about my illnesses but my new one was intent on getting rid of me. To THEIR misfortune, they did. Now the business is gone. I'm wondering if you have ever been tested for multiple sclerosis? I have lots of pins and needle pain in the tips of my fingers and lately my leg acts like it fell asleep when lying in a prone position. Fortunately, FMS has been upgraded in disability so it can be easier to get your disability if you should ever go for it.

Nov 10, 2015 - 3:11 PM by Mary S

Mary, If you have not already done so, please come by and join the fibromyalgia support group on this site. It is a private group but we would love to have you there. Thanks!

Apr 07, 2016 - 3:40 PM by Lana B

My fibromyalgia blindsided me and has been a disaster to my finances. I experience a lot of fibro fog and the pain and frustration of this disease hasn't left me for the 12 years I have had it. I think I finally met one lady that "gets", when my stomach is out of order, or the pain is bad, or I have my fibro fog. I recommend you save every dime you have if you are able to have an income, unless you have someone to support you. I am now 8 years without work and it gets scarier and scarier every day I don't have employment.

Oct 17, 2015 - 11:19 PM by Karen H

Hello Karen. If you have not already done so, please come by and join the fibromyalgia support group on this site. It is a private group but we would love to have you there. Thanks!

Apr 07, 2016 - 3:40 PM by Lana B

Join the community!


You must be a member of healtheo360 in order to view this group

Register with Email Address

Already a member? Click here to login

healtheo360 believes strongly in user privacy.