brave f.

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Member Since: Nov 29th, 2012

Where is she? Where's MyKayla? There she is! rolling in the green grass, giggling away, up and running, she's off to adventure... twinkling sapphire eyes, hazel toned mahogany hair, and a leopards pelt worth of creamy umber freckles... that's our baby girl right there... full of life, independent, determined, stubborn, curious, imaginative, spirited, enthusiastic, intelligent, artistic, an amazing big sister and so full of life that she is always bubbling over with happiness... our daughter has this flair about her, she lives life to the fullest. she is so special to us, she is her sister Ryleigh's special best friend in life... One day she woke up tired... she didn't feel like playing much. she was just a little tired. we noticed she was coughing a little bit... so we let her sit around and watch movies for the day. she wasn't too hungry, she just wanted to snack. We thought she had a bug, so off to urgent care we went. Strep throat was what we were told it was. Awesome strep is not that bad, antibiotics and rest, maybe some salt water gargle here or there, standard treatment for strep... Two weeks or so pass, she still has this lingering cough... it sounds very much like an allergic cough, and given the season it fit. well that cough and the random sneezes. then the stomach aches. daddy, mommy, i hurt, its my belly. strange. so we called a pediatrician and set up an appointment. after a few selective questions and a relatively quick appointment we were hustled out the door with the advice to discontinue milk and dairy in her diet. OK doc, you bet. Sorry Sweetheart no more cheese, butter, milk, mac and cheese, yogurt, you know the drill... buy the almond milk and alternative cheeses, replacement comfort foods and put your foot down when shes gets to missing all the old foods. such a struggle to eat. Two weeks go by, the cough is still there, even more apparent however. louder, more forceful, and a raspy. The dietary changes led to no more bed wetting but the stomach pains did not subside. now they were constant. added to that were the complaints of back and joint pain. she was tired all the time. we noticed she was short of breathe... what is going on? she hasn't ever had allergies before. she is our healthy daughter. Time to go to the doctor again. What was he thinking? lactose intolerance? then came the night sweats and the labored breathing. every night became a decision to go to the ER or not. finally the appointment. The doctor listened, he ran some tests. A lot of people came to see the results... who are all these people? why are they looking at us this way? We found a large mass. Then came the Whirlwind... extra tests, children's hospital called, sent home, pack pack pack, time to go to Portland... drive drive drive, check in, go over the stories time and time again, what has MyKayla been like? any exposures? poke prod, touch, listen, question, wonder, be scared... wait stop! what is going on? Acute Lymphoblastic Leukemia... A cancer of the blood and bone-marrow. a tumor literally the size of a basketball in her chest. Not Strep, not lactose intolerance, not allergies nor a cold... cancer. for some reason this little angel's life path has brought a journey of this magnitude into her life. it is terrifying. it is strengthening, it is sad... we have heavy hearts and melancholy minds...no parent should have to watch their child go through this. children are innocent. they are not deserving of a disease such as this... MyKayla has a treatment plan in place for chemotherapy. she is receiving a multitude of chemotherapy drugs both intravenously and through intramuscular injections. she has to undergo treatment for the next three years. until she is 10. she will lose her hair, feel nausea, pain and depression. she wont feel like a child. she wont feel like herself. but it always gets worse before it gets better.she will have to pull from the deepest within herself to fight this off. she will have to be determined, resilient, strong and unyielding... good thing our little girl is all of these things. Lymphoblasts are immature cells which typically differentiate to form mature lymphocytes. Normally lymphoblasts are found in the bone marrow only, but in acute lymphoblastic leukemia (ALL), lymphoblasts proliferate uncontrollably and are found in large numbers in the peripheral blood smear. July 14th 2012 (diagnosis day and steroid treatment began) Mykayla's Lymphoblast percentage in her blood smear was 33% July 15th 2012 - 51% Lymphoblasts in Mykayla's blood smear July 16th 2012 - 11% Lymphoblasts in Mykayla's blood smear (began chemotherapy) July 17th 2012 - 14% Lymphoblasts in Mykayla's blood smear July 18th 2012 - 16% Lymphoblasts in Mykayla's blood smear July 19th 2012 - 3% Lymphoblasts in Mykayla's blood smear July 20th 2012 - 29% Lymphoblasts in Mykayla's blood smear (got released from hospital) July 23rd 2012 - 31% Lymphoblasts in Mykayla's blood smear July 24th 2012 - BEGAN CANNABIS OIL (RICK SIMPSON OIL, PHOENIX TEARS, WHOLE EXTRACT OIL) July 26th 2012 - 5% Lymphoblasts in Mykayla's blood smear July 30th 2012 - 3% Lymphoblasts in Mykayla's blood (doctor spoke to us about Mykayla's Lymphoblast count failing to go down to 0 and said that a Bone Marrow Transplant MAY BE in our near future because her blasts are not gone from her blood. August 2nd 2012 - 0% blasts August 6th 2012 - 0% blasts August 13th 2012 - 0% blasts August 20th 2012 - 0% blasts TODAY - 0% blasts! We as parents feel that using cannabis has been the best choice we could have made on behalf of Mykayla along her journey. Not only has Cannabis been proven to cause leukemic cell apoptosis (http://www.ncbi.nlm.nih.gov/pubmed/16908594), Mykayla only has to consume a gram of Cannabis Oil daily to counteract the damaging effects and side effects of chemotherapy drugs. The average child undergoing treatment for leukemia has access to and utilizes most of the offered pharmaceutical drugs given to mitigate the same effects. Some of these drugs include narcotic pain relievers, anti-nausea medicines, anti-depressants, laxatives, etc. Most of these drugs have their own unwanted side effects and may or may not counteract or jeopardize the efficacy of one another. Our daughter has been offered in excess of 10 prescription medications throughout her treatment, nearly all of which have been denied. The logic is clear, one natural organic treatment or multiple pharmaceutical chemical based drugs for a child already going through so much. IS THERE ANYTHING TO DEBATE ANY LONGER? PeaceLoveCURE www.facebook.com/bravemykayla #peaceloveCURE www.teammykayla.wix.com/bravemykayla
Leukemia - Newly Diagnosed

Mykayla's Journey with Leukemia

One day she woke up tired... she didn't feel like playing much. she was just a little tired. we noticed she was coughing a little bit... so we ...

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Misc. Stories - Medications, Medical Devices & Medical Procedures

Brave Dad prepares Brave Mykayla's morning medicine

A brief introduction and explanation of Brave Mykayla's medicine. How we go about her morning dosing, and a way to share it with you - because everyon...

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Brave Mykayla tells what Cannabis does for her

Brave Mykayla Comstock shares with viewers what Cannabis does for her.

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Lymphoblasts in Mykayla's blood smear

MyKayla has a treatment plan in place for chemotherapy. she is receiving a multitude of chemotherapy drugs both intravenously and through intramuscula...

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Misc. Stories - Motivation & Support

Brave Mykayla speaks out against the anti-cannabis billboards in Portland Oregon

peaceloveCURE

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Chemicals: listen to the children

Brave Mykayla deftly gives her opinion on herbicides and pesticides - this video was made by her and her alone( we did not even know, we stumbled upon...

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Message to the World from Brave Mykayla

Brave Mykayla Comstock was diagnosed with T-Cell Acute Lymphoblastic Leukemia in 2012, when she was only 7. Chemotherapy didnt work like it was suppos...

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With Every Heartbeat

Brave Momma, Erin Purchase decided it was time for a new tattoo to represent her journey as a mother, through childhood cancer with her daughter Brave...

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Misc. Stories - Diet & Nutrition

Canna Juicing with Brave Mykayla and Brave Momma

Brave Mykayla and Brave Momma want to share how Canna can be juiced, some of the many health benefits and some of the reasons she uses it.

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Misc. Stories - Preparing For The Future

Moving on to maintenance therapy

Video diary: Brave Mykayla is so excited to be ending the delayed intensification round of her chemotherapy regimen. On to maintenance -- two mor...

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Misc. Stories - Caring For A Loved One

Cannabis for children - CannaDad Brandon Krenzler speaks at Hempstalk 2013

Cannadad Brandon Krenzler shares Brave Mykayla's story @ hemp stalk 2013 in Portland Oregon. "I feel that any critically ill child deserv...

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