John B.

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Member Since: Aug 30th, 2012

I am 37 years old and ever since I was very young I have struggled with seizures. I've had seizures from 18 months to age 12 then at about age 20 my seizures started again. I was diagnosed with leukodystrophy wich is a nerve and brain disorder that is a deterioration of nerve tissue. It is a progressive disease that will eventually end my life. I have how ever found a way to help me deal with the struggles that I have with my seizures. I have recently had a surgery that has helped me better control my seizures, and given me time to spend with my family. I have a VNS implant to help control my epileptic attacks, before VNS I had 5-6 seizures a day, now I only have 3-4 seizures a week witch is a major improvement.
Epilepsy - Living And Working With My Condition

Hello Veiwers

This is my intro to my series. These videos were originaly shared on YouTube I was asked by the site admin to start sharing them here. 

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Warning Signs Before A seizure

This video contains information about warning signs that may happen before a seizure. For me I have a ringing in my ears before having a seizure. O...

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Epilepsy - Preparing For The Future

Living with Leukodystrophy

This video explains my condition. 

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Epilepsy - Caring For A Loved One

Surgery Tomarrow

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Epilepsy - Medications, Medical Devices & Medical Procedures

The Importance of Medication

It is very important to take medication for epilepsy. If a person doesn't take there medication they can have more seizures than normal.  ...

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VNS (Vagus Nerve Stimulation)

This is an out patient procedure that takes about 2-3 hours. This is where a small generator about the size of a silver dollar is place under th...

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VNS Surgery Video

This video was shot on the day of my VNS surgery. 

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Epilepsy - Motivation & Support

Epilepsy is nothing to laugh at.

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