Lewy Body Dementia Association (LBDA)

About LBDA

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association's purposes are charitable, educational, and scientific.

Our Vision

A cure for Lewy body dementias and quality support for those still living with the disease.

Our Mission

Through outreach, education and research, we support those affected by Lewy body dementias.

Visit us at www.lbda.org for more information.


Learn About LBD

LBD is not a rare disease. It affects an estimated 1.3 million individuals and their families in the United States. Because LBD symptoms can closely resemble other more commonly known diseases like Alzheimer’s and Parkinson’s, it is currently widely underdiagnosed. Many doctors or other medical professionals still are not familiar with LBD.

LBD is an umbrella term for two related diagnoses. LBD refers to both Parkinson’s disease dementia and dementia with Lewy bodies. The earliest symptoms of these two diseases differ, but reflect the same underlying biological changes in the brain. Over time, people with both diagnoses will develop very similar cognitive, physical, sleep, and behavioral symptoms.


Family Services

LBDA helps to connect LBD caregivers to each other and to the most current information about LBD. Resources available to caregivers through LBDA include:
  • Discussion forums where caregivers meet and share their experiences

  • National network of LBD support groups

  • LBD Caregiver Link – 1-800-LEWYSOS – where caregivers can connect with LBDA volunteers who have personal experience with LBD



Ways To Give

Make a Donation - We are deeply grateful for the generous support of so many individuals, businesses and organizations.  There are many ways to make a gift and help LBDA.

Plan a Community Fundraising Event - If you like planning events and parties, consider planning a Community Fundraising Event. Many events are held in honor of a loved one and are an incredible way to unite your local community.

Volunteer - If you've ever wondered how you can help LBDA grow, here's a great place to start.  Join us today by making a difference, one person at a time.

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