All.Can Initiative



All.Can is an international multi-stakeholder initiative working to improve the efficiency of cancer care by focusing on what matters to patients. All.Can aims to identify inefficiencies in cancer care, which we define as anything that doesn't focus on what matters to patients. Through research and collaboration, we highlight best practices and develop policy recommendations to improve cancer care for all.

 

About Us

 

The decision-making function of All.Can is performed by the international steering committee, while specific activities are overseen by working groups comprising All.Can international members. The steering committee and members are supported by a secretariat, which performs the operational function of All.Can international. It presents quarterly reports of activities, outcomes and finances to the steering committee. The secretariat is currently provided by The Health Policy Partnership Ltd, an independent health policy research consultancy.

All.Can international is funded by several funding partners, who provide a given financial contribution (annually) to the secretariat to fund the entire All.Can initiative.

All.Can international operates at an international level. National All.Can initiatives also exist as independent initiatives in several countries across Europe, North America and Australia. These national initiatives are part of the All.Can family but each has its own governance structure. They may use the All.Can branding as long as they agree in writing to adhere to the All.Can international Terms of Reference.

All.Can international operates a strict editorial control policy, with complete editorial control resting with all members who contribute to any given publication or output.

All.Can international’s activities and their outputs aim to accurately represent a consensus among all members – with ultimate editorial control residing with the Steering Committee. No members have any special editorial status and all efforts are made to give equal representation to all members’ views.

Please note: All.Can international was established in December 2016 for research and education purposes only. It does not promote or endorse the products of any of its funding partners in any of its materials or communications.

All.Can Patient Survey
 

All.Can conducted a patient survey conducted in over 10 counties, which asked almost 4,000 cancer patients and carers where they identified inefficiencies in their care.
 

Patient insights on cancer care: opportunities for improving efficiency

The patient perspective is too often forgotten in considerations of how cancer care can be improved. The All.Can patient survey gave us a unique opportunity to ask this question directly to those who have had personal experience of cancer.

Almost 4,000 cancer patients and caregivers from more than 10 countries across the world responded to the survey to share their experiences. While most reported that their needs were sufficiently addressed during their care, they highlighted some specific areas where they encountered inefficiency.


Ensure swift, accurate and appropriately delivered diagnosis

We asked respondents to choose the one area in which they experience the most inefficiency, and 26% chose diagnosis – more than any other area of cancer care.

Sensitive communication of diagnosis is crucial. Respondents reported issues including lack of empathy and poor timing, such as being told they had cancer on a Friday night and would have to wait until the following week for any further information.


Improve information-sharing, support and shared decision-making

Receiving too much information at once could be overwhelming for respondents, who would have preferred to be given relevant information at appropriate points along the care pathway.

Almost half of respondents (47%) did not feel sufficiently involved in deciding which treatment option was best for them, while 39% felt they had inadequate support to deal with ongoing symptoms and side effects.


Make integrated multidisciplinary care a reality for all patients

The multiple effects of cancer mean that best-practice care involves a well-coordinated multidisciplinary team. Those respondents who received care from specialist cancer nursesreported that the role had been crucial, as the nurse could act as a ‘navigator’ throughout the care pathway.

Allied health professionals such as dietitians and physiotherapists can support cancer patients, but 24% of respondents said that support from such professionals was not always available. Respondents wanted more information about what they could do to support their own treatment and recovery in terms of diet, exercise and complementary therapies.


Address the financial implications of cancer

Respondents reported the various costs of having cancer – many of which were not directly related to treatment, although 51% of respondents had to pay for some part of their care(either out-of-pocket or through private insurance).

The most commonly reported non-treatment-related costs were travel costs (36% of respondents) and loss of employment income (26% of respondents).

 

Click Here to See the Full Report

Resources

 

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